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Resources and tools for navigating Endometriosis and Adenomyosis

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endo-adeno-resources

Resources and tools for navigating Endometriosis and Adenomyosis

Overview

Welcome to your go-to resource for navigating the challenges of Endometriosis and Adenomyosis. Diagnosis, symptom management, and treatment can be really overwhelming, but it shouldn't be.

This resource list is packed with expert advice, community support, and the latest medical research insights, all aimed at making your life a little easier. Whether you're newly diagnosed or have been living with these conditions for a while, my hope is to offer guidance and support. Dive in to discover practical tips, connect with others who understand what we're going through, and explore treatment options that could make a real difference in your life.

Table of Contents

Vetted Physician and Healthcare Providers

  • iCareBetter
    • Connecting as many Endo patients to the right experts as early as possible
  • Nancy's Nook
    • Endometriosis library compiler
  • EndoMetropolis
    • A comprehensive list of vetted endometriosis excision specialists
  • Excision Surgeons
    • Directory of surgeons who perform excision surgery for endometriosis
  • AdenoHope
    • Resources and support for those with Adenomyosis, including a list of vetted healthcare providers
  • EndoExcision
    • Information and resources on excision surgery for endometriosis, including a list of specialists
  • Roon
    • Remote access to vetted medical experts

Diagnostic Tools and Platforms

  • LasaHealth
    • Uses electronic health records to identify undiagnosed chronic pelvic pain patients using AI/machine learning algorithms
  • EndoHealth
    • Endometriosis symptom tracker
  • Qvin
    • Turn your monthly menstrual blood into lab reports and access personalized health data
  • Hertility Health
    • Provides comprehensive reproductive health testing and insights
  • EndoTracker
    • Period tracking app
  • EndoCycle
    • Period tracking app
  • Joii
    • Advancing menstrual and gynaecological health research

Medical Data Tools and Mangers

  • Genetic Data Testing:
  • Genetic Data Storage
    • GenomesDAO
      • Genomes.io provides a private and secure DNA data vault
    • Nebula Genomics
      • Nebula Genomics offers secure storage and analysis of whole genome sequencing data

Automated Tooling for Self-Research

  • Perplexity.ai
    • Perplexity AI is a conversational search engine that uses large language models (LLMs) to answer queries

Therapeutic Treatments

Surgical

Endometriosis Treatments

  • Laparoscopic Excision Surgery
    • "Laparoscopic excision surgery is considered the gold standard for the treatment of endometriosis, involving the removal of endometriotic lesions while preserving healthy tissue."
  • Presacral Neurectomy
    • "Presacral neurectomy involves cutting the nerves to the uterus to relieve severe pelvic pain associated with endometriosis."
  • Lysis of Adhesions
    • "This surgical procedure aims to remove scar tissue (adhesions) that can form as a result of endometriosis and cause pain and infertility."
  • Resection of Deep Infiltrating Endometriosis (DIE)
    • "This surgical procedure targets the removal of deeply infiltrating endometriotic lesions that can affect organs such as the bowel, bladder, and ureters."
  • Robotic-Assisted Surgery
    • "Robotic-assisted surgery offers enhanced precision and control for the removal of endometriotic lesions and is an option for complex cases."

Adenomyosis Treatments

  • Hysterectomy
    • "A hysterectomy, the surgical removal of the uterus, may be recommended for severe cases of adenomyosis that do not respond to other treatments."
  • Uterine Artery Embolization (UAE)
    • "UAE is a minimally invasive procedure used to treat adenomyosis by blocking the blood supply to the affected areas, leading to a reduction in symptoms."
  • Myomectomy
    • "Myomectomy involves the surgical removal of fibroids from the uterus and can be an option for women with adenomyosis who wish to preserve their fertility."

Non-Surgical

Supplements; Therapies; Etc

Cannibas and Herbal

Scientific Research and Findings

Endometriosis

Adenomyosis

Potential Co-morbidities

Financial Assistance Platforms

Advocacy Groups

  • Endo Black
    • Black-women-led nonprofit organization advocating for and educating Black women living with and impacted by endometriosis
  • Transgender Endo Support
    • Provides resources and support for transgender and non-binary individuals with endometriosis
  • Endo Queer
    • Focuses on the LGBTQ+ community, offering support and advocacy for those with endometriosis
  • FOLX Health
    • Provides specialized healthcare services for the LGBTQ+ community, including those with endometriosis
  • Endo Poverty Initiative
    • Aims to support individuals from low-income backgrounds who are affected by endometriosis
  • Endo Latinx
    • Dedicated to raising awareness and providing support for the Latinx community with endometriosis
  • Endo Asian Network
    • Focuses on the unique challenges faced by Asian individuals with endometriosis
  • Indigenous Endo Support
    • Provides advocacy and resources for Indigenous communities affected by endometriosis
  • Endo Disability Alliance
    • Supports individuals with disabilities who also have endometriosis

Regional

Community Sourced Data and Support

Educational Materials

Medical Research

Research Organizations

Current Clinical Studies

Endometriosis Specific Studies

  • The Impact of Hormonal Treatments on Endometriosis Progression
    • "This ongoing study aims to evaluate the effectiveness of various hormonal treatments in slowing the progression of endometriosis and improving patient quality of life."
  • Genetic Predisposition and Endometriosis
    • "This research focuses on identifying genetic markers that may contribute to the development of endometriosis, aiming to improve early diagnosis and personalized treatment plans."
  • Gut Microbiota and Endometriosis
    • "This ongoing research examines the relationship between gut microbiota and endometriosis, aiming to uncover potential therapeutic targets for managing the condition."
  • Long-term Outcomes of Surgical Interventions for Endometriosis
    • "This study evaluates the long-term outcomes of various surgical interventions for endometriosis, focusing on recurrence rates and patient quality of life."
  • Endometriosis and Autoimmune Disorders
    • "This study explores the association between endometriosis and autoimmune disorders, seeking to understand the underlying mechanisms and potential treatment approaches."
  • Endometriosis and Mental Health
    • "This study examines the impact of endometriosis on mental health, aiming to develop comprehensive care plans that address both physical and psychological aspects of the condition."
  • Endometriosis and Cardiovascular Health
    • "This study explores the potential link between endometriosis and cardiovascular health, aiming to identify risk factors and preventive measures for affected patients."
  • Hormonal vs. Non-Hormonal Treatments for Endometriosis
    • "This ongoing research compares the efficacy of hormonal and non-hormonal treatments for endometriosis, focusing on symptom management and patient quality of life."
  • Endometriosis and Inflammation
    • "This research examines the role of inflammation in the pathogenesis of endometriosis, seeking to identify potential therapeutic targets for managing the condition."
  • Endometriosis and Reproductive Outcomes
    • "This study investigates the impact of endometriosis on reproductive outcomes, aiming to develop strategies to improve fertility and pregnancy rates for affected patients."
  • Endometriosis and Gut Health
    • "This ongoing study explores the relationship between endometriosis and gut health, aiming to uncover potential therapeutic targets for managing the condition."
  • Endometriosis and Immune System Dysfunction
    • "This research investigates the role of immune system dysfunction in the development and progression of endometriosis, seeking to identify potential therapeutic targets."
  • Endometriosis and Chronic Pain Management
    • "This ongoing study investigates the effectiveness of various chronic pain management strategies for patients with endometriosis, focusing on both pharmacological and non-pharmacological approaches."
  • Endometriosis and Hormonal Treatments
    • "This research evaluates the effectiveness of various hormonal treatments in managing endometriosis symptoms and improving patient quality of life."
  • Endometriosis and Quality of Life
    • "This ongoing study aims to assess the impact of endometriosis on patients' quality of life, with the goal of developing comprehensive care plans that address both physical and emotional well-being."
  • Endometriosis and Surgical Interventions
    • "This study evaluates the outcomes of various surgical interventions for endometriosis, focusing on symptom relief and patient quality of life."
  • Endometriosis and Non-Hormonal Treatments
    • "This study compares the efficacy of hormonal and non-hormonal treatments for endometriosis, focusing on symptom management and patient quality of life."
  • Endometriosis and Fertility Treatments
    • "This ongoing study investigates the impact of endometriosis on fertility treatments, aiming to develop strategies to improve reproductive outcomes for affected patients."
  • Endometriosis and Genetic Research
    • "This study explores the genetic factors that may contribute to the development of endometriosis, aiming to improve early diagnosis and personalized treatment plans."
  • Endometriosis and Chronic Pelvic Pain
    • "This ongoing research examines the impact of endometriosis on mental health, aiming to develop comprehensive care plans that address both physical and psychological aspects of the condition."
  • Endometriosis and Reproductive Health
    • "This research evaluates the impact of endometriosis on reproductive health, aiming to develop strategies to improve fertility and pregnancy rates for affected patients."
  • Endometriosis and Inflammation
    • "This study examines the role of inflammation in the pathogenesis of endometriosis, seeking to identify potential therapeutic targets for managing the condition."
  • Endometriosis and Cardiovascular Health
    • "This ongoing study explores the potential link between endometriosis and cardiovascular health, aiming to identify risk factors and preventive measures for affected patients."
  • Endometriosis and Autoimmune Disorders
    • "This research investigates the association between endometriosis and autoimmune disorders, seeking to understand the underlying mechanisms and potential treatment approaches."
  • Endometriosis and Gut Health
    • "This study explores the relationship between endometriosis and gut health, aiming to uncover potential therapeutic targets for managing the condition."
  • Endometriosis and Genetic Research
    • "This ongoing study explores the genetic factors that may contribute to the development of endometriosis, aiming to improve early diagnosis and personalized treatment plans."
  • Endometriosis and Chronic Pelvic Pain
    • "This research investigates the role of immune system dysfunction in the development and progression of endometriosis, seeking to identify potential therapeutic targets."
  • Endometriosis and Mental Health
    • "This study investigates the effectiveness of various chronic pain management strategies for patients with endometriosis, focusing on both pharmacological and non-pharmacological approaches."
  • ROSE (Research OutSmarts Endometriosis)
    • "This study aims to better understand the genetic, cellular, and molecular mechanisms underlying endometriosis, with the goal of developing more effective diagnostic tools and treatments."

Adenomyosis Specific Studies

  • Evaluating the Efficacy of Non-Hormonal Therapies for Adenomyosis
    • "This study investigates the potential benefits of non-hormonal therapies in managing symptoms and improving the quality of life for patients with adenomyosis."
  • Innovative Imaging Techniques for Adenomyosis Diagnosis
    • "This study explores the effectiveness of advanced imaging techniques, such as 3D ultrasound and MRI, in accurately diagnosing adenomyosis."
  • Adenomyosis and Fertility Treatments
    • "This research investigates the impact of adenomyosis on fertility treatments, aiming to develop strategies to improve reproductive outcomes for affected patients."
  • Pain Management Strategies for Adenomyosis
    • "This ongoing research aims to identify effective pain management strategies for patients with adenomyosis, focusing on both pharmacological and non-pharmacological approaches."
  • Adenomyosis and Chronic Pelvic Pain
    • "This research investigates the mechanisms underlying chronic pelvic pain in adenomyosis patients, with the goal of developing more effective pain management strategies."
  • Adenomyosis and Uterine Artery Embolization
    • "This study evaluates the effectiveness of uterine artery embolization as a treatment for adenomyosis, aiming to improve symptom management and patient outcomes."
  • Adenomyosis and Quality of Life
    • "This ongoing study aims to assess the impact of adenomyosis on patients' quality of life, with the goal of developing comprehensive care plans that address both physical and emotional well-being."
  • Adenomyosis and Hormonal Treatments
    • "This research evaluates the effectiveness of various hormonal treatments in managing adenomyosis symptoms and improving patient quality of life."
  • Adenomyosis and Surgical Interventions
    • "This study evaluates the outcomes of various surgical interventions for adenomyosis, focusing on symptom relief and patient quality of life."
  • Adenomyosis and Non-Hormonal Pain Management
    • "This ongoing study aims to identify effective non-hormonal pain management strategies for patients with adenomyosis, focusing on both pharmacological and non-pharmacological approaches."
  • Adenomyosis and Mental Health
    • "This research examines the impact of adenomyosis on mental health, aiming to develop comprehensive care plans that address both physical and psychological aspects of the condition."
  • Adenomyosis and Reproductive Health
    • "This study evaluates the impact of adenomyosis on reproductive health, aiming to develop strategies to improve fertility and pregnancy rates for affected patients."
  • Adenomyosis and Inflammation
    • "This study examines the role of inflammation in the pathogenesis of adenomyosis, seeking to identify potential therapeutic targets for managing the condition."
  • Adenomyosis and Cardiovascular Health
    • "This research explores the potential link between adenomyosis and cardiovascular health, aiming to identify risk factors and preventive measures for affected patients."
  • Adenomyosis and Autoimmune Disorders
    • "This ongoing research investigates the association between adenomyosis and autoimmune disorders, seeking to understand the underlying mechanisms and potential treatment approaches."
  • Adenomyosis and Gut Health
    • "This research explores the relationship between adenomyosis and gut health, aiming to uncover potential therapeutic targets for managing the condition."
  • Adenomyosis and Genetic Research
    • "This study explores the genetic factors that may contribute to the development of adenomyosis, aiming to improve early diagnosis and personalized treatment plans."
  • Adenomyosis and Chronic Pelvic Pain
    • "This study investigates the role of immune system dysfunction in the development and progression of adenomyosis, seeking to identify potential therapeutic targets."
  • Adenomyosis and Mental Health
    • "This study investigates the effectiveness of various chronic pain management strategies for patients with adenomyosis, focusing on both pharmacological and non-pharmacological approaches."
  • Adenomyosis and Chronic Pain Management
    • "This ongoing study evaluates the effectiveness of various hormonal treatments in managing adenomyosis symptoms and improving patient quality of life."
  • Adenomyosis and Quality of Life
    • "This research aims to assess the impact of adenomyosis on patients' quality of life, with the goal of developing comprehensive care plans that address both physical and emotional well-being."
  • Adenomyosis and Surgical Interventions
    • "This study evaluates the outcomes of various surgical interventions for adenomyosis, focusing on symptom relief and patient quality of life."
  • Adenomyosis and Autoimmune Disorders
    • "This ongoing study compares the efficacy of hormonal and non-hormonal treatments for adenomyosis, focusing on symptom management and patient quality of life."
  • Adenomyosis and Gut Health
    • "This research investigates the impact of adenomyosis on fertility treatments, aiming to develop strategies to improve reproductive outcomes for affected patients."
  • Adenomyosis and Genetic Research
    • "This study investigates the mechanisms underlying chronic pelvic pain in adenomyosis patients, with the goal of developing more effective pain management strategies."
  • Adenomyosis and Immune System Dysfunction
    • "This ongoing study examines the impact of adenomyosis on mental health, aiming to develop comprehensive care plans that address both physical and psychological aspects of the condition."
  • Adenomyosis and Chronic Pain Management
    • "This research evaluates the impact of adenomyosis on reproductive health, aiming to develop strategies to improve fertility and pregnancy rates for affected patients."
  • Adenomyosis and Hormonal Treatments
    • "This study examines the role of inflammation in the pathogenesis of adenomyosis, seeking to identify potential therapeutic targets for managing the condition."
  • Adenomyosis and Quality of Life
    • "This ongoing study explores the potential link between adenomyosis and cardiovascular health, aiming to identify risk factors and preventive measures for affected patients."
  • Adenomyosis and Surgical Interventions
    • "This research investigates the association between adenomyosis and autoimmune disorders, seeking to understand the underlying mechanisms and potential treatment approaches."
  • Adenomyosis and Non-Hormonal Treatments
    • "This study explores the relationship between adenomyosis and gut health, aiming to uncover potential therapeutic targets for managing the condition."
  • Adenomyosis and Fertility Treatments
    • "This ongoing study explores the genetic factors that may contribute to the development of adenomyosis, aiming to improve early diagnosis and personalized treatment plans."
  • Adenomyosis and Genetic Research
    • "This research investigates the role of immune system dysfunction in the development and progression of adenomyosis, seeking to identify potential therapeutic targets."
  • Adenomyosis and Chronic Pelvic Pain
    • "This study investigates the effectiveness of various chronic pain management strategies for patients with adenomyosis, focusing on both pharmacological and non-pharmacological approaches."
  • Adenomyosis and Immune System Dysfunction
    • "This ongoing study examines the impact of adenomyosis on mental health, aiming to develop comprehensive care plans that address both physical and psychological aspects of the condition."
  • Adenomyosis and Mental Health
    • "This research evaluates the impact of adenomyosis on reproductive health, aiming to develop strategies to improve fertility and pregnancy rates for affected patients."
  • Adenomyosis and Chronic Pain Management
    • "This study examines the role of inflammation in the pathogenesis of adenomyosis, seeking to identify potential therapeutic targets for managing the condition."
  • Adenomyosis and Reproductive Health
    • "This ongoing study explores the potential link between adenomyosis and cardiovascular health, aiming to identify risk factors and preventive measures for affected patients."
  • Adenomyosis and Hormonal Treatments
    • "This research investigates the association between adenomyosis and autoimmune disorders, seeking to understand the underlying mechanisms and potential treatment approaches."
  • Adenomyosis and Inflammation
    • "This study explores the relationship between adenomyosis and gut health, aiming to uncover potential therapeutic targets for managing the condition."
  • Adenomyosis and Quality of Life
    • "This ongoing study explores the genetic factors that may contribute to the development of adenomyosis, aiming to improve early diagnosis and personalized treatment plans."
  • Adenomyosis and Cardiovascular Health
  • Endometriosis and Autoimmune Disorders
    • "This research investigates the association between endometriosis and autoimmune disorders, seeking to understand the underlying mechanisms and potential treatment approaches."
  • Adenomyosis and Non-Hormonal Treatments
    • "This ongoing study compares the efficacy of hormonal and non-hormonal treatments for adenomyosis, focusing on symptom management and patient quality of life."
  • Endometriosis and Gut Health
    • "This study explores the relationship between endometriosis and gut health, aiming to uncover potential therapeutic targets for managing the condition."
  • Adenomyosis and Fertility Treatments
    • "This research investigates the impact of adenomyosis on fertility treatments, aiming to develop strategies to improve reproductive outcomes for affected patients."
  • Endometriosis and Genetic Research
    • "This ongoing study explores the genetic factors that may contribute to the development of endometriosis, aiming to improve early diagnosis and personalized treatment plans."
  • Adenomyosis and Chronic Pelvic Pain
    • "This study investigates the mechanisms underlying chronic pelvic pain in adenomyosis patients, with the goal of developing more effective pain management strategies."
  • Endometriosis and Immune System Dysfunction
    • "This research investigates the role of immune system dysfunction in the development and progression of endometriosis, seeking to identify potential therapeutic targets."
  • Adenomyosis and Mental Health
    • "This ongoing study examines the impact of adenomyosis on mental health, aiming to develop comprehensive care plans that address both physical and psychological aspects of the condition."
  • Endometriosis and Chronic Pain Management
    • "This study investigates the effectiveness of various chronic pain management strategies for patients with endometriosis, focusing on both pharmacological and non-pharmacological approaches."
  • Adenomyosis and Reproductive Health
    • "This research evaluates the impact of adenomyosis on reproductive health, aiming to develop strategies to improve fertility and pregnancy rates for affected patients."
  • Endometriosis and Hormonal Treatments
    • "This ongoing study evaluates the effectiveness of various hormonal treatments in managing endometriosis symptoms and improving patient quality of life."
  • Adenomyosis and Inflammation
    • "This study examines the role of inflammation in the pathogenesis of adenomyosis, seeking to identify potential therapeutic targets for managing the condition."
  • Endometriosis and Quality of Life
    • "This research aims to assess the impact of endometriosis on patients' quality of life, with the goal of developing comprehensive care plans that address both physical and emotional well-being."
  • Adenomyosis and Cardiovascular Health
    • "This ongoing study explores the potential link between adenomyosis and cardiovascular health, aiming to identify risk factors and preventive measures for affected patients."
  • Endometriosis and Surgical Interventions
    • "This study evaluates the outcomes of various surgical interventions for endometriosis, focusing on symptom relief and patient quality of life."
  • Adenomyosis and Autoimmune Disorders
    • "This research investigates the association between adenomyosis and autoimmune disorders, seeking to understand the underlying mechanisms and potential treatment approaches."
  • Endometriosis and Non-Hormonal Treatments
    • "This ongoing study compares the efficacy of hormonal and non-hormonal treatments for endometriosis, focusing on symptom management and patient quality of life."
  • Adenomyosis and Gut Health
    • "This study explores the relationship between adenomyosis and gut health, aiming to uncover potential therapeutic targets for managing the condition."
  • Endometriosis and Fertility Treatments
    • "This research investigates the impact of endometriosis on fertility treatments, aiming to develop strategies to improve reproductive outcomes for affected patients."
  • Adenomyosis and Genetic Research
    • "This ongoing study explores the genetic factors that may contribute to the development of adenomyosis, aiming to improve early diagnosis and personalized treatment plans."
  • Endometriosis and Chronic Pelvic Pain
    • "This study investigates the mechanisms underlying chronic pelvic pain in endometriosis patients, with the goal of developing more effective pain management strategies."
  • Adenomyosis and Immune System Dysfunction
    • "This research investigates the role of immune system dysfunction in the development and progression of adenomyosis, seeking to identify potential therapeutic targets."
  • Endometriosis and Mental Health
    • "This ongoing study examines the impact of endometriosis on mental health, aiming to develop comprehensive care plans that address both physical and psychological aspects of the condition."
  • Adenomyosis and Chronic Pain Management
  • Adenomyosis and Immune System Dysfunction
    • "This study investigates the role of immune system dysfunction in the development and progression of adenomyosis, seeking to identify potential therapeutic targets."

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